Action Plan Launched for Delivering Shared Decision Making in the UK

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Centre for Decision Research

Professors Hilary Bekker (School of Medicine, Leeds Institute of Health Sciences) and Barbara Summers (Centre for Decision Research co-director, Leeds University Business School) are part of the National Institute of Health and Care Excellence (NICE) Shared Decision Making Collaborative. The Shared Decision Making Collaborative launched their action plan and consensus statement for delivering Shared Decision Making in the UK on Monday 19 September 2016. Over two years, three consensus meetings were held, overviews of evidence and practice were critically evaluated (eg patient decision aids), and all stakeholders contributed to draft statements and the future strategy for the collaborative. The University of Leeds committed to undertaking research in the field of decision science and sharing that expertise with both NICE and NHS England, particularly on the interface between patient decision aids, the International Patient Decision Aid Standards and the Information Standard. It builds on Professor Bekker’s partnership work with NHS-Rightcare to deliver 35 open-access, web-based patient decision aids and NHS-Advancing Quality Alliance shared decision making training to staff, and long-term collaboration with Professor Barbara Summers and colleagues from the Leeds Centre for Decision Research. The below blog post is written by Professor David Haslam, Chair of NICE, and first appeared on the National Institute of Health and Care Excellence website on 18 September and has been reposted here with permission.

Profile picture of Hilary Bekker and Barbara Summers

Working together to put patients at the heart of decisions about their care

Professor David Haslam, Chair of NICE

According to the King’s Fund, 15 million people in England have long term health conditions, and this number will inevitably rise as medicine becomes ever more effective in preventing premature deaths.

As our health service faces this growing challenge, it’s more important than ever for clinicians and health care professionals to move away from ‘top-down’ medicine and connect with patients on decisions about their care, doing medicine with people rather than doing it to them.

There is a growing body of evidence about the benefits of shared decision making.  When clinicians and patients make decisions together, research has shown that this can lead to more appropriate decisions being made about care, which in turn can improve both patient safety and patient satisfaction. In some cases, it can even result in more cost-effective care.

The advantages are clear, but what is being done to embed this important practice within our health and social care services?

In 2015, the Shared Decision Making Collaborative was formed. This brought a wide range of individuals and organisations together, led by NICE, to serve a common goal – driving forward shared decision making. A commitment which will ensure that patients and clinicians work together to select tests, treatments and support packages, based on both clinical evidence and what really matters to the individual patient.

[Earlier this month], the collaborative has set out a range of recommendations to encourage a shared decision making culture. An action plan has also been published which describes how these recommendations will be put into practice.

This is an important step forward that will help transform the way we deliver the best care to patients.

The leading organisations in our health service are joining forces and committing to a future that will see improved patient centred care for everyone. It’s not just about the words on a page, it’s about making it happen and ensuring that shared decision making becomes an essential part of medical practice.

NHS England has pledged to make sure that involving patients in the decisions about their care is rooted in to ongoing work programmes. And we will work with them to ensure that tools to support the clinician/patient conversation are up to standard and embedded within guidance and pathways.

Healthwatch England has committed to help advocate and support this initiative in local health and care systems, and the General Medical Council has agreed to incorporate shared decision making within its Generic professional capabilities framework, which sets out the knowledge, skills and behaviours which doctors need.

Personalising care for the individual is fundamental to our future. It is imperative that we actively seek and listen to our patients and involve them in the development of our NHS and social care services.

The plans put forward [this month] by the Shared Decision Making Collaborative are proof that we’re up for the task. Let’s work together and change the future of healthcare for the better.

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The views expressed in this article are those of the author and may not reflect the views of Leeds University business school or the University of Leeds.